Rory's getting a Dynasplint

Pin It Yesterday we were fitted for a dynasplint.  It is a straightening device for her leg that she will wear at night.  After talking to her physcial therapist I learned that sometimes the last few degrees of straightening could be the hardest, so my hopes are that the dynasplint will help. 

These Pictures are of her getting measured for her splint. This they put the sock on her and then did a Cast mold. She didn't mind the sock. But he didn't getting the cast mold off, Because some of the cast was stuck to her leg.

When Rory was in the hospital we called the blood pressure machine the "arm hug" so we are referring to her dynasplint as a "knee hug." hopefully it will ease her into wearing it a bit, since it will probably be a little awkward at first.  Because she is so small we have to get it specially made for her, many of the prosthetic places don't have one in stock that will fit her little leg.

I am quite curious to see not only how she will do with it, but also if it will help.  I wonder if this delay in her leg straightening will cause a delay in her next surgery.  Hopefully we can call her doctor and inform him soon that her leg is straightening a complete 180 degrees and he will inform us of our next steps in our CFD journey....but who knows. I am trying to be as optimistic as possible; but at the same time am so sick of seeing Rory struggling with her leg.  Sometimes it is really hard to be a mom....lets hope this dynasplint can work its magic!

Physical Therapy Progress!

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Although we have a new born in the house, which is difficult on its own; we also have a crazy toddler; which again is difficult on its own....but on top of everythign we have a crazy toddler who is still rehabilitating from her surgeries- and it is difficult!

Rorys favorite is getting to use the treadmill!

Rory is currently going to physical therapy as much as possible- 4 times a week (the office is only open four days a week).  We also do our physical therapy homework three times a day at home for 30-45 min each time, depending on how sore her leg is or how fussy she is).  We will do everything we can to keep her from screaming during our "Stretches," and lately that is playing with the ipad or watching the Lion King!

Rory on the big swing (one of her favorites)

She doesn't mind her physical therapy either.  We to make it as fun as possible.  She has two physical therapist and I couldn't be more happier with either of them.   They let her play with toys and I sit on the sidelines cheering her on as much as I can.  Zin is there too, and she loves when I have Zin help and play too.

fishing

As of today, her leg has straightened by 15 degrees!  We still have 10 more degrees to go, but I have no doubt in my mind she can do it!  I am so proud of her- she has had such a hard time and is such a trooper with everything.

Sick Bug!

Pin It Rory was sick this yesterday morning. She woke up throwing up and continued to throw up throughout the whole morning. It was so difficult with Zin too!
Rory has never thrown up like that before, normally she would throw up pnce- maybe twice- and be done but this time she was throwing up and throwing up throwing up. The only thing worse than this was her going to surgery. I just feel so bad when it looked you with those innocent eyes and see they are hurting.
I had flashbacks of Florida today when she started feeling better and wanted to eat and drink. It reminded me of the second surgery she had and how she had to wait until after the surgery to eat and drink and she didn't go in surgery until 11:30 AM when she was up at 6 AM. Todau She ate drink a little bit but would almost instantly throw things up, it was awful.
However in the afternoon she perked up. I could tell by the way she was acting, the color in her face, and the fact that she was not super warn! . She ran up and give me hugs- It was wonderful! I think she's on the mend now and all is clear!

Photo Friday!

Pin It Sister love!

Rory's Hospital reaction when Zin was born

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I went to the hospital around 12:30am on a Monday night.  Luckily, we had our friend come over and watch Rory while she was sleeping.  I was nervous about her waking up and not having me or Jon there, but she did really well.   I had our friend take her to her physical therapy appointment in the morning so things would be somewhat normal, and her physical therapy is right next to the hospital so I had her stop by on her way.

I was unsure how Rory would act seeing me in the hospital bed.  At first she just got a strange look in her eye.  She saw my catheter and said, "Mommy, I had one of those when I was in surgery."  She sat by me but didn't make eye contact with me or look at me at all. She was hesitant to give me a hug before she left for her physical therapy. I felt bad, I know she was reminded of her time in Florida.

before Zin came....

When she came back from physical therapy Zin was born.  although she was very concerned with the small baby in the room, she looked at me and i could tell she was concerned with me being on the hospital bed. I reassured her I was ok, and she got to meet her sister. The look in her eyes was priceless- she looked at me like, "these people were't kidding, this new baby is real."  

meeting Zin

After she met her new sister, they took Zin away for a bath and her heat lamp and Rory was able to stay with me. She reverted to Florida behavior immediately. She laid with me in the bed, held my hand, and asked to watch the Lorax on the iPad. She was quiet, but would occasionally talk to me about things that were similar with this hospital and when she had her surgery. 

Things got better when we switched rooms and I wasn't hooked up to all the machines!

She has a good memory, but I'm hoping as she gets older the memories of Florida and her surgeries will fade.

Photo Friday!

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Our New baby!

Pin It We have a new baby in the house! We welcomed our Zin last week and she is amazing. She currently has her days and nights mixed up, but hopefully we can get her on track soon. Rory is a great big sister. She gets really excited for diaper changes! It's also been a hard adjustment for Rory, which I will go in detail with more later- right now I've got 2 beautiful girls napping and I'm going to join them!