Tuesday, January 31, 2012

Still difficult for me....

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Recently, I have spent some time with some friends I haven’t seen in a long time, which has been so wonderful.  A lot of them haven’t seen Rory since she has been an infant so they are al amazed to see her walking and talking.  This in turn means they haven’t seen her with her shoe on, and many of them I haven’t even told about Rory’s condition. 
I pretty much only “came out of the closet” about Rory’s condition a few months ago.  I kept it a secret for so long, not because I was ashamed of her or her condition tall but rather, because I didn’t want anyone to look at her or treat her differently.  Once she got her shoes I found myself cropping pictures to keep her feet out of the picture.  I realized people were going to find out sooner or later, so may as well tell them. 
Telling them and them seeing it is different.  Her shoe looks much bigger in person.  It is only a 5 centimeter lift, but it looks large since she is so little.  The people who don’t know about her condition have been polite and have asked nicely about it, and even those who do know have been nice about it; but I find myself still having a hard time. 
The other day when I was at my nephew’s birthday party his grandmother asked about it.  I found myself almost in tears thinking about it.  His grandmother was so sweet and even compared her doctor in Florida to a dentist she knows who teaches people how to do root canals (it was sweet, old people make me laugh).  But I was really getting choked up thinking about it.  Now I get choked up for a different reason, because her surgeries are so close now, 8 months away. 
I am not sure why this is so hard for me; I live with it every day, I see how Rory’s leg doesn’t affect her and how she does more with her bad leg than many kids with two good legs.  And maybe it’s a mother thing, but I am honestly not sure how or if I will ever become “calm” talking about it.  It has gotten to the point where I am not so much bothered by telling people about her condition, it’s me thinking about what is going to happen.  About the pain my baby will be in after her surgeries.  I think about my girl on a hospital bed and with screws in her legs and a part of me dies inside and I almost feel like vomiting.
I wonder if I will after her first few surgeries if I will be ok talking about it, if I will become used to it and it will be a second nature to me. 
I know things with Rory could be a million times worse, and I really need to be thankful for her good health.  But it’s hard for me sometimes, I really just want her to be “pain free” for the rest of her life, but I guess she wouldn’t be pain free even without her surgeries, life is hard sometimes. 

Friday, January 27, 2012


Pin It Rory is now doing a new sign- share! It's really very sweet to see we share with her baby bear and anyone else close by. The down side is she shares so much with me that I'm going to have to start working out twice a day!!! She loves sharing her food and it's so sweet to hear her say "mama" and sign share that I automatically eat whatever is in the little hand that is shoved in front of my face.
She's so good at sharing!

A hard day

Pin It I know on this blog I have only talked about great things that have happened in our lives, rorys amazing ability to use sign language, her advancement in somersaults and other milestones, and many other great accomplishments Rory has done. Many readers probably think that other thank her small leg, rory is the perfect baby and a complete angel.

Well today is a perfect example of how she is not always a complete perfect angel. Today was probably the hardest day I have ever had with rory! Perhaps it is because she is no sleeping so well or it could be because she is getting almost 6 teeth at once, but whatever the reason rory has lived up to her "in house" nickname (and favorite social distortion song) of "mommys little monster.

There has been screaming, throwing, hair pulling, fussing, crying, falling, biting, and the day is only half over. I literally called my husband at work in tears, and his assistant could hardly her me over rorys crying! I did giver her some Tylenol for her teeth and that seemed to help; however she is still having a hard day... And when she has a hard day, I usually have an awful day.

So here is rorys photo friday picture, and my sympathies go out to all moms out there that have had days like mine, where they wish they could get a break at 5 pm, I feel your pain.

Wednesday, January 25, 2012

Rory's Favorite book!

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I was in no way compensated for reviewing this book- it is just something Rory loves that I feel like talking about today ;)

One of Rory's Christmas presents from her Mimi and Papa was a book.  We knew it had to be good because my mom seems to pick out some of Rory's favorite books.  This one is no exception- Rory loves it so much.  Last night Jon kept asking her if she wanted to read a different book, but all she wanted was, "Do Princesses Really Kiss Frogs?"  
Ill be honest, it is quite repetitious to read the same book over and over and over, so to make it interesting we pick out different things on the pages, like the butterfly or the squirrel, and then the next time around we make the noises of the animals.  Now Rory automatically points to things!  It is really cute.

I think one reason why I like the book so much is because its about a little girl going for a hike with her dad and dog.  Rory of course loves picking out the dog on each page and then lunging over to pet our dogs, and yes, that is one reason why i like it but not the main reason.  I think the main reason is because I can see when Rory is finished with all of her first few surgeries and has has recovered,  her getting all packed up for a hike with her daddy, packing a lunch and drinks, getting the dogs ready, getting shoes on etc..., going outside for maybe 30 minutes tops and Rory getting tired and coming back in.   Perhaps it is the mother in me that is making me soft, but it makes me smile. 

Love the book- Love how Rory is reading it and how she is learning new things with each page- Love the thoughts it brings in my head of future hikes ;) 

Tuesday, January 24, 2012

Already a good mommy!

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I am such a sucker for Target.  The other day it was raining and I couldn’t take Rory to her playground, so we went to Target to play.  I found some bottles there for her baby, Kindof (yes, that is her baby’s name, her cousin named her and gave her baby to Rory for her birthday...I will blog all about Kind of soon!).   I didn't give them to her yet, I thought they would make a good valentine's day treat for Kind of, so I just left them in my bag.  
Today Rory saw them and wanted to know what they were immediately!  So we broke out the bottles, and Rory was so cute with them!  She made some food for Kindof to eat, then made sure she drank all her juice!  She even made drinking noises for her!   It was probably the cutest thing ever!
She wanted those bottles SO bad!

She made Kind of Cereal, her favorite!

Such a good mommy!

Monday, January 23, 2012

Bubbles Bubbles

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One of Rory's most favorite things in the world is bubbles.  Every time she gets fussy, I go straight for the bubbles.  The only issue with blowing bubbles, is that she gets really upset when we stop.  We have been blowing bubbles since she was a baby- (Here are some pictures from January 2011).  

It is so neat to see how she used to just look at the bubbles, and track them with her eyes.  Now she is all over them, she pops them with her hands and steps on them.   She even has her own "bubble noise" which sounds similar to a raccoon.

We have the Gymboree bubbles too, we had to make a special trip last weekend because we were out of them!  I know its all just soap and water, but there is something about those gymboree bubbles that are phenomenal!

They stay on the floors, in our hair, on anything which Rory loves because she loves to pop them and step on them!  They do leave a nasty residue on the floor, but its well worth it to see this little girl make her raccoon noise while she steps on the bubbles!

I wish bubbles made me this excited!

Saturday, January 21, 2012

Homemade Finger Paint Fun!

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Finger painting fun!   Rory and I had nothing planned today so we decided to make our own finger paint!  I chose to make our own paints because I know Rory is getting her molars now and so everything is in her mouth.  I did just a basic flour, salt and water mixture so that if she decided to have a mid morning snack it would be OK.  The recipe made a lot, so next time we are going to need to have a play date so we don't waste any paint! 

We had so much fun painting, we put out a big strip of my old pattern making paper and went to town.  I didn't think that she would use the paint brushes, but she actually used them a lot!

I got the recipe from this old school craft binder I found at a yard sale, called "A Guide to Children's Creative Play."  It was well worth the quarter! 

Here was our Recipe:
2 cups of flour
5 cups of cold water
1/4 cup of salt
food coloring
sauce pan
wooden spoon

I mixed the flour and water in a saucepan and cooked over low heat until it was nice and smooth

Then I mixed in the salt and allowed the paint to cool

I then divided it into 6 small cups and used food coloring to make the colors

 Getting down and dirty with the paint!  Put your hands in!

 We got her feet involved too!

 Here's the Cute look!
 She loves painting and was so good at it! We used so much paper but it was well worth it because now daddy has more art work for his office!  And believe it or not...She didn't eat any paint!
a great end to finger painting, a nice warm bath!!!

Friday, January 20, 2012

Photo Friday!

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My most favorite part of my day is around 12:30.  Rory gets so tired and sleepy and just wants to sit in my lap on the beanbag and read books.  She is tired and super snuggly and I love every second of it!    Sometimes she falls asleep while we are reading books.  It is the best part of my day!

Wednesday, January 18, 2012

Rory- the fearless wonder!

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I have no idea where she gets this fearlessness from because I am not fearless.  I am horrified of many things, however I am very scared of heights- which do not seem to phase Rory at all.  I have attached a video of Rory yesterday afternoon when we attended our second playground of the day.  She now forgoes the small slide and heads straight for the big kid slide and begs for more. 
She will climb and bounce on almost anything, and doesn’t think about falling off the bed or couch.  She runs full speed into me and Jon and slowing down isn’t even an option for her.  Fearless.
Her new “trick” is to walk on her tippy toes in her shoes.  She tries so hard and falls a majority of the time, but she loves doing it, and is getting quite good.  She is not afraid not to do anything!  
Rory wears her shoe as much as possible, but usually first thing in the morning when she is still in her jammies and right before bed when she is in her jammies, are the times she is “shoeless.”  (These are the same times when my anxiety acts up...coincidence....hmmm).  She still runs around, does sneaky walks, baby steps, and marches just like she has her shoe on.  She falls, gets back up, and performs some more.  No shoe, no problem...that could be her motto ;)
I know she has never had two legs the same length and therefore she thinks having one short leg is the norm, but I wonder if she gets scared to do things without her shoes sometimes.  Like when she eagerly tries to climb up the coffee tables or tries to hang from her book shelves, is she a little more scared without her shoes?  If so, she sure doesn’t show it!  
Perhaps everything balances out- Rory is fearless because I have taken all her fears!  Either way, I am so glad she lets nothing get in her way, I hope she stays fearless forever, or at least until she becomes a mother :). 

Tuesday, January 17, 2012

Back to the routine!

Pin It Rory has had a few fun days, Daddy has been home for MLK day and we have been playing so much together; however, today it was back to normal routine!

Today started her first time in the Library's Story Time.  We have been going since she was about 6 months old and she really likes it, today she did Story time at a new library.  We haven't been for a while because of her crazy nap schedule, so today she was a little timid.  They sang songs like itsy bitsy spider, that she knows, but she was very quiet and taking it all in.

I get nervous doing new things with her too- its always new people and often people staring and asking questions about her shoes.  Today I came prepared- I brought business cards with Rory's website on it so if anyone asks about it I can hand them a card and tell them to check out this site!  The cards, and the fact that we had a few friends come to story time with us, helped ease my anxiety.

Her teacher was so much better than the last teacher we had!  It is always good to get out and see friends. After library time we have to stay and play- the library has lots of books and toys for kids!  The best part, there is a playground out back, and today is in the upper 60's so we had to make the best of it!

Monday, January 16, 2012

Cold Cold Cold

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Even though it is freezing outside, Rory still wants to play!  She goes right up to the door, signs for outside, and will even bang on the door after she signs if we "pretend" not to see her.  So we have been taking her out to the park for a few minutes just to get some energy out and then come back inside to get warm.

We bundle her up in several layers; tights, pants, onsies, long sleeves, sweaters, fleece, coat, hat, gloves...

She never seems to keep gloves on at all, but we recently got a pair that doesnt' have thumbs, so its one big mitten and she seems to wear those pretty well.

 Rory always cries when its time to come back inside!

Daddy and I have been freezing, Rory is quite the slide addict!

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