Tuesday, January 29, 2013

Hotel Home!

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The first night in the hotel was completely sleepless for us all.  We thought things would be better out of the hospital, but we didn't take into consideration that Rory would have really bad nightmares.  She was up most of the night just scared.  I had to constantly hug her and let her know she was ok.  I think it was also hard for her because she was in the spica cast, she couldn’t move at all.  It was a hard night, but we were out of the hospital- so we were good!
very happy to see her mimi
We gave her pain meds before bed that night, but that was the last time she took them.  Before we came to Florida, she loved medicine and would always ask for more- even the gross kind.  She, now came up with an Oscar winning performance for spitting out medicine.  Over the next few days we tried everything to get her to take them and nothing worked. 
The dreadlock in her hair had grown so much since she was in the hospital.  We thought we were going to have to cut it out of her hair.  I had no idea what to do with it- Rory’s long blond locks and beautiful and we didn’t want to cut them, so I figured I would have to try and get it out.  The only issue, Rory was so sensitive to everything, anything that may hurt her was intensified and hurt 10 times more than normal.  I was prepared to cut it, but wanted to try to comb it out.  
dreadlock was SO big!
With all of her nightmares, we were up early that morning.  She was still very “out of it” so I thought it would be a good time to try and get her hair done as much as possible.  I put the ipad down on the ground and let her watch whatever she wanted for all of the 2 hours, detangling spray, and ton of conditioner it took me to untangle her hair.  We had to make little cuts, but all in all the hair was intact!  
We noticed she had come down with a pretty nasty rash on her back.  It was pretty gnarly, it was very red and inflamed.  It didn’t seem to bother her at all, and we knew we had to go back to Dr. Paley’s in 2 days so we would ask about it then.  
Hair combed- back rash!
It was my parents last night here, so they spent as much time with us as possible.  When it was nap time, my parents went out and ran our errands for us.  My dad bought her a small Christmas tree, since we weren’t sure how long it would be before we could go home.  
excited to eat oatmeal.  she couldn't sit with her spica cast so she had to eat sitting on one of our laps.
We were all so happy to be out of the hospital!

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