Wednesday, May 29, 2013

Rory's Dynasplint

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We finally got rorys dynasplint, or her leg hug. Her leg still is t straightening from her past suegeries. She has been doing amazing and now only has 10 degrees of flexion to gain befoee her leg can straighten like normal again. I hate that rory has to have another new piece id hardware but if it will help steaighten that leg i will make her wear ir as much as pissible. 

We went to her shoe doctor to ger jt measured and to learn how ir worked. It's not what I expected, it's more "breathable".  To wear it her knee needs to be flexed (which is clearly not an issue for her).  You get the circle piece directly on the knee joint and tighten the Velcro strap to secure the knee. Then you tighten the strap on her thigh and the strap on her ankle. 
There is a knob on it for you to turn and we turn it so that her leg is straight, or as straight as we can get it. She can't walk with it on, obviously, so we try to have her wear it at bedtime, naptime, and if I let her watch a little tv. 
Sleeping with it is not the most fun, she often wakes up screaming for us to take it off. She does like it when I let her wear it when she gets to watch TV, since TV is a special treat at our house. 

She is on her last 10 degrees of straightening and I know that she can do it. Like the last 5 pounds are the hardest to lose, apparently the last degrees of flexion are the hardest to gain. I hope the "leg hug" can help us achieve it as pain free as possible. 



Wednesday, May 8, 2013

Rory's getting a Dynasplint

Pin It Yesterday we were fitted for a dynasplint.  It is a straightening device for her leg that she will wear at night.  After talking to her physcial therapist I learned that sometimes the last few degrees of straightening could be the hardest, so my hopes are that the dynasplint will help. 

These Pictures are of her getting measured for her splint. This they put the sock on her and then did a Cast mold. She didn't mind the sock. But he didn't getting the cast mold off, Because some of the cast was stuck to her leg.

When Rory was in the hospital we called the blood pressure machine the "arm hug" so we are referring to her dynasplint as a "knee hug." hopefully it will ease her into wearing it a bit, since it will probably be a little awkward at first.  Because she is so small we have to get it specially made for her, many of the prosthetic places don't have one in stock that will fit her little leg.

I am quite curious to see not only how she will do with it, but also if it will help.  I wonder if this delay in her leg straightening will cause a delay in her next surgery.  Hopefully we can call her doctor and inform him soon that her leg is straightening a complete 180 degrees and he will inform us of our next steps in our CFD journey....but who knows. I am trying to be as optimistic as possible; but at the same time am so sick of seeing Rory struggling with her leg.  Sometimes it is really hard to be a mom....lets hope this dynasplint can work its magic!
 

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