Monday, December 29, 2014

Doctor Day!

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Today we have another doctor appointment.  Her doctor appointments are different from the appointments we see the PA's for- today is where they will take an X-ray and measure how much bone she has actually grown and see how that bone is doing.  These days are always pretty nerve wracking for me (hence me blogging early in the morning)!

I am always so nervous, and being a mother of a child with CFD- I have every right to be nervous, one X-ray could mean anything: a surgery, a increased pin turn, a decreased pin turn, extra time here in Florida...anything.  I have been so concerned with her pins and the infections that I always forget to wonder how much her bone is growing and if it is growing on schedule.....Today I find out!

I will probably have the silly feeling in the pit of my stomach all morning, up until we talk to the doctor, I have learned to bring ginger everywhere I go ;)

I will tell you this, there aren't words to describe the excitement I get when the doctor tells me how much her bone is growing.  To see her pre fixater X-ray side by side to current X-ray: its completely unexplainable.  I feel like screaming and crying and jumping for joy!  It just shows that all the hard work we do here at the house is working!  The screaming and crying during our stretches, its working; the daily physical therapy, its working, and we have to stay on top of it!  Its one of the best feelings I have ever had in my life- I get tears in my eyes now just thinking about it!

So, I'm drinking my coffee, and I feel like a young child waking up on Christmas.  Im so excited to see what Santa brought, but in the back of my mind there is the little voice telling me Santa may have just brought coal.   Right now, I have to be optimistic, there is no reason for me to be pessimistic.

I can't wait to tell you all how much bone we have!

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