Monday, June 29, 2015

Update- Trip to Dr. Paley this week

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Here is a current update on Rory.  She's having straightening issues again.  Poor girl, she can walk on it, but only for a little bit and she starts to hurt.  She will walk with her knee locked around 45 degrees.  I will do straightening stretches with her in the house (which bring me back to about 2 years ago when her whole straightening issues began).

So this week we are headed down to Florida.  The tricky part is we aren't sure if we will be there for one week, or a few months.  We will find all that out on her appointment.  Either way Zin gets to come with us.  It would be super easy if it was just a down and back appointment she could easily stay here, but if we could potentially be down there for months; that opened up a whole new can of worms.

There is a huge difference in packing with kids for 3 days or 3 months, and booking hotels, rental cars, etc...  The normal quantum house was full so we will stay at a hotel for the mean time.  The hotel close to the hospital is not ideal because of the neighborhood so if we have to stay for months I may try to find a spot similar to where we stayed during her lengthening, where my kids can walk outside.

Its difficult because we just came home, whats hardest for me is that I thought after this lengthening we would have a "break" in major issues that required us to go down to see Dr. Paley; (but then I remembered Rory's body is almost post-human in the way it develops....i tell myself that to make me smile...).

Just when we thought we were home...we have to leave again.  Please keep her in your thoughts and pray it can be fixed non surgical!  Its very scary when you book a one way ticket, but here is hoping that Rory gets the break she so desperately deserves and we are back in a week.

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